Enhance Your Organization's Engagement and Sustainability

Services that Build Your Organization's Success

Our Vision

Today’s RDPO’s have numerous communications and data needs throughout their ecosystem. Zoom or other video chat platforms don’t provide the required connection. The RareVerse’s lifelike, avatar-based Metaverse technology provides movement and social interaction to people who are wheelchair bound or bedridden.

Auditorium

A large space to deliver informational meeting to the entire RDPO, Science Committee presentation and training programs.

Hangouts

Places for Members to casually, sit on the floor, play games, talk, and interact in a cool and fun setting. Builds RDPO connection and engagement. 

Movie / Video Theater

A space available to play video files or “YouTubes” where people can meet communally and experience a “Watch Party” like experience. People are pared off and can speak with each other and others around cannot hear.

Meeting Rooms

Places for Members to conduct private group meetings, sit on the floor or at a desk. Write on the white board to capture your thoughts.

Library / Digital Resource Center

Places for Members to casually, sit on the floor, play games, talk. A place to gather documents, important to your RDPO. They are accessible only to your members. In addition, you can add links to public resources on the Internet. It is constructed like a traditional library, where each book links to the private or public resource.

Why Partner with Us?

We offer five unique spaces each designed to meet the diverse needs of the RDPO.

About Us

Our roots are in Rare Disease. Sean Gordon, our founder, is a Patient with an adult onset indication, Adult Polyglucosan Body Disease (APBD). He has worked passionately with the Community and is a co-founder of World Rare Advocacy Partnership (WRAP). He writes a quarterly column, “RareTech”, the intersection of Rare Disease and Technology for Rare Revolution E-Zine. He is a graduate of EURODIS summer program.

Opportunities

Pricing

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